Resources:
Websites to Visit:
Still Have Questions?
There are so many organizations out there to tap into for financial resources,
legal issues, even support groups, etc. The websites listed below are in
alphabetical order.
http://www.arcmass.org
ARC Massachusetts is a statewide agency that promotes quality community
service and advocates for enlightened public policy.
http://www.carepoints.org
CarePoints is a resource and support center for parents, caregivers and health
care professionals to improve and maximize care for medically complex children
and their families.
http://www.community-autism-resources.org
Community Autism site offers resources, support and organizational training for
individuals with Autistic Spectrum Disorders, their families, professionals, and
their communities.
http://www.doe.mass.edu/sped
Massachusetts Department of Education, the web site regarding Special Education,
with information and links to other web sites regarding special education
issues.
http://www.dlc-ma.org
This is the home page for the Disability Law Center, with links to SSA/SSI and
other disability resource; includes DLC fact sheets on disability benefits.
http://www.familiesusa.org
Families USA is a national nonprofit, nonpartisan healthcare advocacy and
watchdog organization. They regularly publish clear, comprehensive policy
briefs.
http://www.fcsn.org
Federation for Children with Special Needs
http://www.fetaweb.com
Discusses the process of writing an effective IEP.
http://www.geocities.com/mhsfamilyoutreach
Massachusetts Hospital School Family Outreach is the website of MHS families who
have children with physical and/or multiple disabilities with links to products,
resources, financial assistance and their message board. http://www.hcfama.org
This website, Health Care for All, has information and
updates on issues regarding health care access, public
and private insurance, and links to other resources
containing information on current health care and access
issues. http://www.helpforkidspeech.org
This website focuses on speech and language problems. http://www.magnet.state.ma.us/dss
Department of Social Services http://www.massfamilyties.org
Family TIES is a statewide information and support
network for families of children with special needs. http://www.massfamilyvoices.org
Massachusetts Family Voices is the state chapter of the
national organization composed of parents and
professionals who are committed to improving systems of
care for children with special health care needs. http://www.mass.gov/mod
Massachusetts Office on Disability's purpose is to bring
about full and equal participation of people with
disabilities in all aspects of life. http://www.masslegalservices.org
Massachusetts Legal Services is a relatively new
resource that contains updates and information on many
issues including benefits, consumer, disability,
education, elder, employment, family law, health care,
and housing. (The children's 2003 SSI charts are
included in the "disability" category.) http://www.parentinfonet.freeservers.com
Parent Information Network http://www.pcsonline.org/helpline
Parent stress site. http://www.schwablearning.org
This is my absolute favorite website. This website
is where I go to get solid advice and encouragement from
other moms of special needs children. The people
who visit this website are just like you. They
really know what you're going through, because they're
going through it too. It's a great place to dump,
to cry, to laugh, and to VENT! http://www.socialsecurity.gov
This is the Social Security Administration's home page
with links to many other resources including information
on supplemental security income (SSI). http://www.state.ma.us/dma
This is the Massachusetts Division of Medical Assistance
home page, with links to DMA publications, information
for providers, pharmacy, press releases, frequently
asked questions, etc. http://www.state.ma.us/dph
Massachusetts Department of Public Health oversees the
health care system of Massachusetts. This home
page has links to publications, statistics, health
topics and other resources including the Division for
Special Health Needs programs. http://www.thegenesisfund.org
The Genesis Fund National birth defects center. Americans
with Disabilities Act
Civil Rights Division
U.S. Department of Justice
P.O. Box 66118
Washington, DC 20035-6118 202-514-0301
(Voice)
202-514-0383 (TDD)
202-514-6193 (Electronic Bulletin Board)
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